Today, I met a very special girl. I was at the mall with my brother shopping and while we were at the food court, we saw this little girl. Her name is Hana. She is THE ONLY person in California who is diagnosed with Progeria. Just last night we found out about her, and watched her videos all over tumblr & youtube. We approached her at the mall today, and I started talking to her. She was very tiny, and very soft spoken, She was telling my brother and I how she met Selena Gomez and how she made the little bracelet for her. She even gave my mom a kiss on the cheeks. AND YES SHES ALIVE. People started a nasty rumor last night that she has passed away, obviously it is NOT true since we met her 2 hours ago. And ITS spreading. She was with her teacher, and we exchanged emails. She personally asked my brother & I to spread it all over that she is alive and well, so here I am trying helping out. I will post the email her teacher sent me soon.
If you could please reblog and help Hana out, and spread the word that she is alive & well, please reblog this regardless that it wont match your tumblr theme. Lets help her out, and encourage her to stay strong.
progeria absolutely fascinates me. shes beautfiul
Hi my name is Shainah.
This is me without the makeup.
Last night 3 girls and 1 boy verbally abused me.
I was called a circus freak, candle wax face, ugly bitch, deformed girl, “it”, a monster, wierd looking creature and many other hurtful names.
I was born with a bilateral clef lip protruding to my left eye. The umbilicul cord was wrapped around my face in the womb so my face didnt fully develop. I wasnt born with cheek bones because like I said my face didnt develop correctly. They had to take my rib and use it as replacement cheekbones.
My eyes arent perfect either. I had a tumor in the right one.
I wasnt born with any nasal passages. They had to pierce the inside of my nose. For an entire year my mom would have to put tubes down my nose to my lungs so I could breathe.
I’m not telling my story for sympathy or “reblogs” (reblog if you want) My main message is that after having 27 surgeries I am strong and I will not let words hurt me. Don’t be ignorant and make fun of someone whose story you know nothing about.
I’m lucky that I’m alive.
My scars don’t define me. Instead they tell a story. They tell everyone around me, AND remind me each day that I am a survivor and I am a strong woman. Even the strongest of people break down sometimes. Please remember that words hurt. I may be strong but some girls aren’t.
Wow, she is amazing. Fuck those disgusting bitches making fun of her, stupid ass bitches, i would of beat them with a metal bat! She is BEAUTIFUL. I would love to meet her. She’s inspiring.